Just finished reading this.
10 October 2016
28 September 2016
Son of Thalidomide
I was having a nice chat with my chemo doctor Tuesday. I asked him to recommend for me a book or paper that would explain in detail how my daily drug Revlimid works. All I knew prior to that question was that it was a derivative of the dreaded anti-nausea medication Thalidomide, and that it somehow prevented the creation of new blood vessels, thereby killing off cancer cells the way its parent drug killed off the creation of arms and legs in babies in the 1950s.
He explained that scientists don’t know how Revlimid works. He clarified that it enters the bone marrow (where my cancer comes from) and kills off the cancer cells. Okeh. Then he told me that my kind of cancer was originally treated with Thalidomide.
Color me surprised. I hadn’t heard that. Although it helped, the original treatment had so many side effects that some clever doctor figured out what exactly in Thalidomide worked against the cancer and pulled out that small part -- resulting in Revlimid, what my doctor called “the first designer drug.”
Revlimid, in general, has few side effects and those are pretty mild. Thankfully, I’ve had virtually none of them, so that makes me really happy. According to my doctor, my numbers are still doing really well and that makes him really happy. I guess the situation is the best it could possibly be for a cancer that I’ll have the rest of my life and a drug that I’ll keep taking for the same length of time.
He explained that scientists don’t know how Revlimid works. He clarified that it enters the bone marrow (where my cancer comes from) and kills off the cancer cells. Okeh. Then he told me that my kind of cancer was originally treated with Thalidomide.
Color me surprised. I hadn’t heard that. Although it helped, the original treatment had so many side effects that some clever doctor figured out what exactly in Thalidomide worked against the cancer and pulled out that small part -- resulting in Revlimid, what my doctor called “the first designer drug.”
Revlimid, in general, has few side effects and those are pretty mild. Thankfully, I’ve had virtually none of them, so that makes me really happy. According to my doctor, my numbers are still doing really well and that makes him really happy. I guess the situation is the best it could possibly be for a cancer that I’ll have the rest of my life and a drug that I’ll keep taking for the same length of time.
23 September 2016
Everything You Wanted to Know About the "James Murray Mysteries" but were Afraid to Ask
The 1930s were a long time ago and Los Angeles a very
different world. And now, a year after the last James Murray Mystery was
published, I've published an encyclopaedia of sorts that explains all the
little inside jokes, esoteric bits and pieces of historic information, and the
background behind some of the choices I made as the author of the five novels
set in 1930s Los Angeles.
The James Murray Mysteries Companion is filled with all
kinds of information -- like the actual people who were the basis for the
mysterious Miss Compton and the dashing Buddy Rogers in the first novel. The
origin of Scott Hobby in the second novel. The real person behind the fictional
scientist in the third novel. (Hint: he’s not a scientist!) Why I chose
baseball as the setting for the fourth novel. Some of the famous Hollywood
stars who have cameos in the fifth novel.
You’ll uncover my favorite actress, my favorite movie,
my favorite dessert and my favorite restaurant in Los Angeles as they all make
appearances in one or more of the novels. I also explain how a real-life
medical condition of mine was used to inform the plots of two of the novels.
So, sit back, relax and discover some of the secrets
contained in the five James Murray Mysteries!
[You’ll find the link to the book in the column to the right
called “My Books.”]
11 September 2016
28 August 2016
Two Faced
I’ve always been a stoic person -- dealing with pain or hardship and trying really hard to not show it to others (except Matt, my spouse, of course; he has to endure my bitching and complaining). I always figured everyone had problems: making a fuss about mine isn’t going to make mine better and sure is going to make things harder for everyone else.
When I had surgery for my heart defect (January 2015) I didn’t make a big deal about it. I told few people, was in and out of the hospital lickety-split, went back to work 13 days after I got out of the hospital and basically returned to the life I had before.
When I was diagnosed with cancer in December 2015 (obviously, not a good year for me) I did the same thing: told only those who needed to know, started the chemo and endured the side effects with little complaint. When I go out to see people I do everything in my power to put on a happy face. There are whole groups of people who interact with me who don’t know I have cancer because I’m always so upbeat and optimistic. But cancer and chemo are exhausting; and, while things are better now (reduced chemo, etc.), it’s still a challenge.
I think because I present my “can do” attitude, they think my cancer is not bothering me. I was discussing this very issue with Matt just a few days ago. I think people are expecting more from me because they think “His cancer isn’t bothering him, so he can do this.” Well, it is bothering me and, increasingly, I can’t do it.
Now, of course, when I have to turn down things -- like lunch dates, extra work assignments, etc., which is bad enough -- I also have to explain that my cancer and chemo are the reasons why. I can just imagine people thinking “He’s lying. He’s always been fine with his cancer and chemo. It’s just an excuse.”
I’m not sure what to do: I don’t want to have to explain everything to everyone, I don’t want pity, and I don’t want people to stop inviting me to lunch because they’re afraid of exhausting me. I guess the best I can hope for is an understanding that I have good days and I have bad days. I like to laugh and carry on like everyone else and I certainly don’t want to be defined by my cancer.
When I had surgery for my heart defect (January 2015) I didn’t make a big deal about it. I told few people, was in and out of the hospital lickety-split, went back to work 13 days after I got out of the hospital and basically returned to the life I had before.
When I was diagnosed with cancer in December 2015 (obviously, not a good year for me) I did the same thing: told only those who needed to know, started the chemo and endured the side effects with little complaint. When I go out to see people I do everything in my power to put on a happy face. There are whole groups of people who interact with me who don’t know I have cancer because I’m always so upbeat and optimistic. But cancer and chemo are exhausting; and, while things are better now (reduced chemo, etc.), it’s still a challenge.
I think because I present my “can do” attitude, they think my cancer is not bothering me. I was discussing this very issue with Matt just a few days ago. I think people are expecting more from me because they think “His cancer isn’t bothering him, so he can do this.” Well, it is bothering me and, increasingly, I can’t do it.
Now, of course, when I have to turn down things -- like lunch dates, extra work assignments, etc., which is bad enough -- I also have to explain that my cancer and chemo are the reasons why. I can just imagine people thinking “He’s lying. He’s always been fine with his cancer and chemo. It’s just an excuse.”
I’m not sure what to do: I don’t want to have to explain everything to everyone, I don’t want pity, and I don’t want people to stop inviting me to lunch because they’re afraid of exhausting me. I guess the best I can hope for is an understanding that I have good days and I have bad days. I like to laugh and carry on like everyone else and I certainly don’t want to be defined by my cancer.
20 August 2016
03 August 2016
02 August 2016
Gone to the Dogs!
My incredibly talented spouse, Matt, just started a big sale of his original silk-screen prints in his Etsy store! The prints are of famous children's-book characters silk-screened onto pages of their own stories! He takes old and damaged books, puts the pages on Bristol board and then adds several layers of silk screened images to them. It's recycling at its best! He's got lots to choose from, including Nancy Drew, Dorothy (from Wizard of Oz), Huckleberry Finn, Sherlock Holmes, and even some dog and cat prints! Remember, the winter holidays are right around the corner. It's never too early to start buying presents! Just go to his LitKids store, before the end of September, and enter the checkout code DOGDAYS. You'll get $5.00 off your purchase of $20.00 or more. Shop now!27 July 2016
57, and all its Different Varieties
When I was in high school, I was certain that I would be dead before the age of 30. No specific reason, just a certainty. After reaching 30, then 40, then 50 I decided it would be kinda cool to live to be 80 -- to see how the world changes in my lifetime.
Then, the subtractions started:
When I found out I needed surgery to correct a heart defect, I was all for it. My father died (lung cancer) when he was 71 and I was determined to live until at least 72.
Then I found out I had a type of cancer that could not be cured and for which the average life expectancy after diagnosis was only 5 years. So, I became determined to live to be at least 61.
Today I turn 57 and I’m pretty happy to have made it this far. Although my cancer treatment is going well, there is always the possibility things may take a turn for the worst, or that I will get hit by a car, or shot by one of those “good” people with a gun.
But then, the additions started:
Tuesday, I had a visit with my cancer doctor. I’ve been doing a “maintenance” chemo regimen that has contributed to my numbers getting even better each month. My doctor said “If I were a teacher handing out grades, I would give you ‘A’s right across the board.” He even smiled when he said this. :-) I asked him frankly about the 5-year average and he said I could pretty much forget about that, that he would feel confident giving me at least another 10 years, by which time there would be new and hopefully better treatments. (Out of the blue he said “I can’t guarantee you’ll make it to 80” -- which I thought was an interesting coincidence.)
So, I guess it’s true to say that -- for me, anyway -- life begins at 57!
Then, the subtractions started:
When I found out I needed surgery to correct a heart defect, I was all for it. My father died (lung cancer) when he was 71 and I was determined to live until at least 72.
Then I found out I had a type of cancer that could not be cured and for which the average life expectancy after diagnosis was only 5 years. So, I became determined to live to be at least 61.
Today I turn 57 and I’m pretty happy to have made it this far. Although my cancer treatment is going well, there is always the possibility things may take a turn for the worst, or that I will get hit by a car, or shot by one of those “good” people with a gun.
But then, the additions started:
Tuesday, I had a visit with my cancer doctor. I’ve been doing a “maintenance” chemo regimen that has contributed to my numbers getting even better each month. My doctor said “If I were a teacher handing out grades, I would give you ‘A’s right across the board.” He even smiled when he said this. :-) I asked him frankly about the 5-year average and he said I could pretty much forget about that, that he would feel confident giving me at least another 10 years, by which time there would be new and hopefully better treatments. (Out of the blue he said “I can’t guarantee you’ll make it to 80” -- which I thought was an interesting coincidence.)
So, I guess it’s true to say that -- for me, anyway -- life begins at 57!
23 July 2016
Ten is the Loneliest Number
I just
watched the movie “The Imitation Game” and gave it my personal rating of 10
stars out of 10. I’m really stingy with 10-star ratings, so I wondered how
many films I have given that elusive rating.
I’ve been
tracking all the films I’ve seen since November 1994 (when I met the man who
would become my spouse). In that period, I’ve seen 2552 movies. Out of those, I’ve given only 39 movies a rating of 10 stars (that’s .015%).
The oldest film is from 1927; the most recent is from 2014. There are some from other countries (England has four; Germany has two), some are animated, and many are in black and white -- with a couple silent films thrown in. Many of the films are from the old Hollywood movie-studio system, but some are from outside the studio system. (“Citizen Kane” is absent from this list because, even though I have seen the film many times, I have not seen in since I started tracking my films. I’ll have to address that.)
The oldest film is from 1927; the most recent is from 2014. There are some from other countries (England has four; Germany has two), some are animated, and many are in black and white -- with a couple silent films thrown in. Many of the films are from the old Hollywood movie-studio system, but some are from outside the studio system. (“Citizen Kane” is absent from this list because, even though I have seen the film many times, I have not seen in since I started tracking my films. I’ll have to address that.)
Here is the
list (in alphabetical order):
2001: A Space Odyssey (1968)
All About Eve (1950)
All the President's Men (1976)
Argo (2012)
Bambi (1942)
Capote (2005)
The Day the Earth Stood Still (1951)
Double Indemnity (1944)
Drive (2011)
The English Patient (1996)
Fa yeung nin wa (In the Mood for Love, from Hong Kong) (2000)
Fail Safe (1964)
The Imitation Game (England) (2014)
Inception (2010)
Iris (England) (2001)
Jaws (1975)
L.A. Confidential (1997)
The Last Emperor (1987)
Lawrence of Arabia (1962)
Das Leben der Anderen (The Lives of Others, from
Germany) (2006)
Man with the Movie Camera (Soviet Union) (1929)
Mildred Pierce (1945)
Mononoke Hime (Princess Mononoke, from Japan) (1997)
Network (1976)
Olympia 1. Teil - Fest der Völker (Festival of the
Nations, from Germany) (1938)
Ordinary People (1980)
Original Cast Album - Company (the making of the cast
album) (1970)
Le Peuple Migrateur (Winged Migration, from France) (2001)
Rebecca (1940)
Singin' in the Rain (1952)
Sunset Boulevard (1950)
Temple Grandin (2010)
Toy Story (1995)
Vera Drake (England) (2004)
Wallace and Gromit Curse of the WereRabbit (England) (2005)
Wall-E (2008)
Who's Afraid of Virginia Woolf? (1966)
Wings (1927)
Wo hu cang
long (Crouching Tiger Hidden Dragon, from Taiwan) (2000)
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