28 October 2016

TGIF -- Sometimes

For most people, Fridays are the start of happy times and a great weekend. When I was a kid, Friday night promised either a night of great happiness or great terror. It was a coin toss -- until the clock struck 6:00 p.m.

For a large chunk of his life, my father was an alcoholic. He didn’t drink all the time, but when he did it was bad. His favorite time for drinking was after work Friday. I don’t necessarily blame him. He had a job that was physically tough and he worked hard to provide us a life free of want (mostly). But there were times he needed to drink and get drunk.

On the good Fridays, when he came home right after work (before 6:00 p.m.), he might have picked up fried chicken for dinner, we might have dinner at home, or go to a local fast-food place (which was exotic to a young kid back then).
From my personal collection.

On the most special nights of all, we would go to a restaurant called Jack’s (see photograph) on the northwest corner of McDowell Road and the I-17 freeway near downtown Phoenix. Jack’s offered all-you-can-eat fish fry or chicken and dumplings. I almost always got the fish -- along with a build-it-yourself balsa-wood airplane from the waitress.

If the clock struck 6:00 p.m. and he wasn’t home yet, we knew it was going to be a bad night. I’ll spare you details of what happened on those nights. But there was one particular bad night I remember vividly -- even though it happened more than 45 years ago.

During summer, I would sometimes walk to a public swimming pool. I would walk home; or my mother or father would pick me up after work. On this particular Friday, it was my father’s turn. The pool closed (probably around 6:00 p.m.), so I left and waited outside. I don’t know what time it was that my father showed up (although it had already gotten dark -- and it gets dark very late here in summer), but I was so happy to see his white truck pull up. I got in (ignoring the liquor smell), shut the door and we started home. When we stopped at an intersection, I glanced over and saw my father’s right arm covered in fresh blood from a huge gash. Terrified, I started screaming and crying. Turns out my father got in a fight outside the bar with “some Mexican” and the other person slashed him.

13 October 2016

The Sodium Chronicles

My cancer affects the efficiency of my kidneys. If I eat too much sodium, my body retains water because my kidneys can’t filter out the sodium as quickly as they used to. So, too much sodium and I retain water; retaining water leads to edema, which leads to weight gain and additional strain on my kidneys making me a generally unhappy camper.

It’s taken me a while to figure out that a certain meal eaten at a restaurant one day leads to a weight gain the next. Research pinpointed sodium as the culprit. Further research indicates that I pretty much cannot eat any meals at any restaurants ever again (it would seem).

Keeping in mind that the daily recommended maximum of sodium is 2,000 mg, I’m trying to eat no more than 1,000 mg of sodium at lunch (and very little at breakfast and dinner). This means I can’t eat Pei Wei’s Pad Thai any more because it has (get ready) more than SIX THOUSAND mgs of sodium in a bowl. A wrap at Jersey Mike’s has more than 2,200 mgs (I can eat half today and half tomorrow, I suppose). A wrap at Chipotle has more than 2,300 mgs.

This is only a problem when I eat out. At home, eating low sodium is a breeze: cook from scratch, don’t add salt to foods, etc. Easy peasy. But, who doesn’t like to eat out once in a while? I know I do (or, I did).

28 September 2016

Son of Thalidomide

I was having a nice chat with my chemo doctor Tuesday. I asked him to recommend for me a book or paper that would explain in detail how my daily drug Revlimid works. All I knew prior to that question was that it was a derivative of the dreaded anti-nausea medication Thalidomide, and that it somehow prevented the creation of new blood vessels, thereby killing off cancer cells the way its parent drug killed off the creation of arms and legs in babies in the 1950s.

He explained that scientists don’t know how Revlimid works. He clarified that it enters the bone marrow (where my cancer comes from) and kills off the cancer cells. Okeh. Then he told me that my kind of cancer was originally treated with Thalidomide.

Color me surprised. I hadn’t heard that. Although it helped, the original treatment had so many side effects that some clever doctor figured out what exactly in Thalidomide worked against the cancer and pulled out that small part -- resulting in Revlimid, what my doctor called “the first designer drug.” 

Revlimid, in general, has few side effects and those are pretty mild. Thankfully, I’ve had virtually none of them, so that makes me really happy. According to my doctor, my numbers are still doing really well and that makes him really happy. I guess the situation is the best it could possibly be for a cancer that I’ll have the rest of my life and a drug that I’ll keep taking for the same length of time.

23 September 2016

Everything You Wanted to Know About the "James Murray Mysteries" but were Afraid to Ask

The 1930s were a long time ago and Los Angeles a very different world. And now, a year after the last James Murray Mystery was published, I've published an encyclopaedia of sorts that explains all the little inside jokes, esoteric bits and pieces of historic information, and the background behind some of the choices I made as the author of the five novels set in 1930s Los Angeles.

The James Murray Mysteries Companion is filled with all kinds of information -- like the actual people who were the basis for the mysterious Miss Compton and the dashing Buddy Rogers in the first novel. The origin of Scott Hobby in the second novel. The real person behind the fictional scientist in the third novel. (Hint: he’s not a scientist!) Why I chose baseball as the setting for the fourth novel. Some of the famous Hollywood stars who have cameos in the fifth novel.

You’ll uncover my favorite actress, my favorite movie, my favorite dessert and my favorite restaurant in Los Angeles as they all make appearances in one or more of the novels. I also explain how a real-life medical condition of mine was used to inform the plots of two of the novels.

So, sit back, relax and discover some of the secrets contained in the five James Murray Mysteries


[You’ll find the link to the book in the column to the right called “My Books.”]

28 August 2016

Two Faced

I’ve always been a stoic person -- dealing with pain or hardship and trying really hard to not show it to others (except Matt, my spouse, of course; he has to endure my bitching and complaining). I always figured everyone had problems: making a fuss about mine isn’t going to make mine better and sure is going to make things harder for everyone else.

When I had surgery for my heart defect (January 2015) I didn’t make a big deal about it. I told few people, was in and out of the hospital lickety-split, went back to work 13 days after I got out of the hospital and basically returned to the life I had before.

When I was diagnosed with cancer in December 2015 (obviously, not a good year for me) I did the same thing: told only those who needed to know, started the chemo and endured the side effects with little complaint. When I go out to see people I do everything in my power to put on a happy face. There are whole groups of people who interact with me who don’t know I have cancer because I’m always so upbeat and optimistic. But cancer and chemo are exhausting; and, while things are better now (reduced chemo, etc.), it’s still a challenge.

I think because I present my “can do” attitude, they think my cancer is not bothering me. I was discussing this very issue with Matt just a few days ago. I think people are expecting more from me because they think “His cancer isn’t bothering him, so he can do this.” Well, it is bothering me and, increasingly, I can’t do it.

Now, of course, when I have to turn down things -- like lunch dates, extra work assignments, etc., which is bad enough -- I also have to explain that my cancer and chemo are the reasons why. I can just imagine people thinking “He’s lying. He’s always been fine with his cancer and chemo. It’s just an excuse.”

I’m not sure what to do: I don’t want to have to explain everything to everyone, I don’t want pity, and I don’t want people to stop inviting me to lunch because they’re afraid of exhausting me. I guess the best I can hope for is an understanding that I have good days and I have bad days. I like to laugh and carry on like everyone else and I certainly don’t want to be defined by my cancer.

03 August 2016